目的 系统评价脑卒中患者家属代理决策的体验,为提供代理决策辅助,提高决策质量提供依据。方法 计算机检索 PubMed,EMbase,CINAHL,Web of Science,ProQuest,中国知网,万方,SinoMed 中关于脑卒中患者家属代理决策体验的质性研究,检索时限为建库至 2024 年 12 月 25 日。对符合纳入标准的文献进行质量评价,并采用 Meta 整合中的汇集性整合方法进行整合。结果 共纳入 7 项研究,提炼出 25 个主题,归纳为 8 个新的类别,综合成 3 个整合结果:决策过程复杂;决策时受诸多因素影响;渴望决策支持。结论 脑卒中患者家属代理决策决策时情绪复杂,决策负担重,缺乏决策支持。医护人员应关注此类人群的决策需求,提供科学的决策辅助措施,减少决策冲突。
Objective To systematically evaluate the surrogate experience of families for stroke patients and to provide an evidence-based guidance for improving supports for decision-making and quality of decisions. Methods A systematic search was conducted across PubMed,EMbase,CINAHL,Web of Science,ProQuest,CNKI,Wanfang Data,and SinoMed from the inception to 25th December,2024 for qualitative studies. The quality of the literature that met the inclusion criteria was evaluated,and the aggregative integration method in Meta integration was adopted for integration. Results A total of 7 studies were included,25 themes were identified and grouped into 8 categories. The categories were synthesised into 3 domains: complexity of decision-making process,multiple factors influencing decision-making and strong need for decision support. Conclusion When making surrogate decision families for stroke patients face complex emotions,heavy burdens of decision-making,and inadequate decision-making support. Healthcare professionals should recognise the needs of the surrogate decision-makers and offer them with structured and evidence-based assistances in order to reduce conflicts in decision-making





